| Location | Wigan |
| Age | 3 months |
| Cause of Death | Genetic Condition |
| Date of Birth | 13/12/2008 |
| Date of Death | 20/03/2009 |
| Visitors | 2,171 since 10/06/2009 |
| Creator |
Aimee was a surprise addition to the family but we all looked forward to the day she would arrive.
At my 18 week scan it was discovered she had a hole in her heart so we were referred to a consultant who confirmed she had a complete AVSD but with surgery she would be ok. We chose not to find out if she had Downs Syndrome as well as the amnio may have caused a miscarriage so we waited til she arrived.
Aimee arrived on 13 December and seemed well and after 2 days in neonatal and a heart echo was sent home. A chromosome check discovered she definately did not have Downs but had a problem with her number 8 chromosome which we are still waiting to find out the full extent of.
2 weeks later she was admitted to our local hospital with an unrelated infection and given antibiotics. During this time she went into heart failure and failed to thrive. After 3 weeks we were transferred to Alder Hey Children's hospital.
We spent the next 4 weeks on the ward trying to get her to put on weight so she could have her surgery but after 4 weeks of no weight gains we saw the consultant who hit us with the news that not only did she have the complete AVSD the left side of her heart wasn't functioning properly which is not usually seen with her condition. So they could not stop her heart to operate on it but without the op she only had a matter of time.
Our option was to do nothing or to have a central line inserted to give stronger drugs to try and improve the function of her heart to give her a chance at surgery.
The next day she had the central line inserted but the anaesthetic knocked her for six and she spent the next 5 weeks on a ventilator in ICU.
The drugs made no difference and they tried a PA band operation but this didn't help and we were told daily that Aimee was unlikely to make it and we were asked to withdraw care but we couldnt as we hoped and prayed the miracle we needed would happen and Aimee would improve.
At about 11.00pm on Friday 20 March I got a call from ICU saying Aimee wasn't doing too well so I rushed over and she died peacefully in my arms at 11.40pm. She had made the decision herself that she had had enough.
She had such a short life and it seems so unfair. She touched a lot of peoples hearts while she was alive and she will never be forgotten and is loved so much by everyone.
My precious little angel is flying high and playing in the angels playground.
We recently went to see the genetics doctor who cofirmed that Aimee had an 8P 23 deletion, along with an addition in it's place. The whole tip of the chromosome was missing and replaced with this "other material" which we don't know where it was from or what it was made up of but we were told that a deletion along with an addition meant that Aimee would have always been worse off than if she only had one problem. Therefore the odds were stacked against her from the start.
Sleep tight little angel X
to our beautiful grandaughter
thik of you all the time but most of all today on your 3rd birthday .how time flies lots of love grandad and nana xxx.
Happy Birthday In Heaven - by Winnie Lovett
"Happy Birthday Aimee "
It's sure to be the best one yet,
Though you left us here behind.
Did you think that we'd forget?
Your cake this year, will surely be,
A beauty to behold.
With the icing made of Silver,
And the candles made of Gold.
Yes, your birthday in Heaven,
Will be such a grand affair.
And I know you'll look so lovely,
With a halo in your hair.
The Angels will come from everywhere,
To sing your birthday song.
And I know they'll be so happy,
That you've joined, God's Happy Throng.
No I can't send a card this year,
Or give a gift so fine.
So I'll just send a special prayer,
To that wonderful Daughter of yours.
My Precious Granddaughter - by Unknown Author
For Barbara X
I have a little Granddaughter,
Who means the world to me
She's living with the Angels
And is as special as can be
And even though she's up there,
Playing in the clouds
She's still my precious Granddaughter
And I am so very proud.
I know I can not hold her,
Or bounce her on my knee
But only have to close my eyes,
Her little face to see.
I never will stop missing her
And wishing she were here
But sometimes I feel, indeed I know
That she is very near.
So play happily my Precious Angel
I love you so and always will,
And you will never be forgotten
I am your Nanna still.
Always thinking of you
Aimee Rose
You'll always have a special place in my heart. You know that you joined the angels a few days before our Alannah entered the world and then was called to join you and your friends 3 weeks later.
I always think of you two girls as best buddies, getting up to mischief and having lots of fun in the angels playground.
You are always loved, never forgotten and forever missed.
Heaven’s Playground by Charlotte Anselmo
(Printed with Permission)
When children go to Heaven what do they do all day?
Is there someone up there to join with them in play?
Will there be someone to hold them and cuddle them with love?
Will they teach them how to fly with angels up above?
I think I know the answer and it fills my heart with joy
A place called Heaven’s Playground for every girl and boy.
There are angels blowing bubbles, lovely music fills the air
Tiny pups to play with, I know they’re happy there.
All our love to your mum and dad and big sisters Sian and Erin.
Eveline, Tom and Mikey xxxx
Heavenly Garden
God has a lovely garden
In His mansion up above,
He tends the garden every day
With tenderness and love.
The flowers that are in it
Are the sweetest and the best,
To get into God's garden
They have to pass a test.
He goes around them every day
Treating them with care,
You're really very lucky
You have a flower in there.
And when you reach the garden
You'll look at it with pride,
Knowing God, He'll probably put you
At your loved one's side.
~ Author unknown~
A whole year!
I say 'goodmorning' to you everyday when i see you're beautiful photograph that sits next to my bed. It makes me smile most days but today i feel sad. I would love nothing more than to see you on your first birthday, you entertained us so much when you were just a couple of months old, what a character you'd be today! Happy 1st Birthday Aimee. You are loved so much sweetheart. Sending you lots of hugs and kisses from Di x x x
aimee
treasured memories of our darling grandaughter aimee rose its 12 months since you became an angel yet it only seems like yesterday we love you so much and think about you so often we know you are looking down on your lovely mummy and daddy and beautiful sisters and giving them the strength to carry on without you love you always nana and grandad xxxxxxxxxxxxxx
My Sweet Angel
Aimee,
A year has passed since I last held you in my arms. The time has gone so quickly yet it still feels like only yesterday.
I think about you every day and I miss you so much though I feel you with me all the time.
Shine brightly in the sky and watch over your sisters.
Love you my sweet brave angel
Mummy
XXXXX
Mother's day
How I have missed you today. How I wished you could have enjoyed the day with your daddy and big sisters and me.
Thought about you so much
I love you
XXXXX
Happy Christmas my sweet angel :-) XX
I wish you could have been celebrating christmas with us and your sisters.
Thinking of you all the time.
Sleep tight
XXX
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